Vulnerabilities and missed chances: the dynamics in the relationship between parents of disabled children and professionals in the context of chronic sorrow

Authors Edith Raap, Katie Lee Weille, Christine Dedding
Published in Journal of Social Work
Publication date 2025
Research groups Wonen en Welzijn
Type Article

Summary

The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized as having an influence on the relationship between professionals and parents. However, there is a lack of in-depth understanding of how chronic sorrow shapes dynamics in the parent–professional relationship. Through participatory action research, we explored the perspectives on chronic sorrow that parents and professionals brought into communication, ultimately leading to mutual understanding.

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On this publication contributed

  • Edith Raap | Promovendus| Innovatieve Maatschappelijke Dienstverlening
    Edith Raap
    • PhD candidate
    • Research group: Wonen en Welzijn
Language Engels
Published in Journal of Social Work
Key words social work, grief and loss, health and social care, parenting, disabilities, family support
Digital Object Identifier 10.1177/14680173251369716
Page range 1-19

Edith Raap

Edith Raap | Promovendus| Innovatieve Maatschappelijke Dienstverlening

Edith Raap

  • PhD candidate
  • Research group: Wonen en Welzijn