‘I do Things that I don’t Really Want to do …’: Understanding the Everyday Lives of Family Carers of People With Dementia

Authors Jacoba Huizenga, Sascha Bolt, Jean-Pierre Wilken, Nienke Bleijenberg, John Keady, Tine van Regenmortel
Published in Dementia
Publication date 2025
Research groups Participatie Zorg en Ondersteuning
Type Article

Summary

In the Netherlands, where this study was conducted, there are around 800,000 family carers of people with dementia. Research into the needs and priorities of people with dementia and their family carers is crucial for developing tailored care and meaningful support. However, current research lacks attention to the everyday life experiences of caring for someone with dementia at home. Therefore, the research question this study aimed to address was: how do family carers of people with dementia living at home approach and experience their everyday life in a caring context?

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On this publication contributed

  • Jacoba Huizenga
    • Researcher
    • Research groups: Participatie Zorg en Ondersteuning, Proactieve zorg voor thuiswonende ouderen
  • Jean-Pierre Wilken
    • Emeritus lector
    • Research group: Participatie Zorg en Ondersteuning
  • Nienke Bleijenberg | lector | lectoraat Chronisch Zieken
    Nienke Bleijenberg
    • Lector
    • Research group: Proactieve zorg voor thuiswonende ouderen
Language Engels
Published in Dementia
Key words everyday life, family carers, psychosocial, dementia, neighbourhood, citizenship
Digital Object Identifier 10.1177/14713012251368682
Page range 1-19

Jacoba Huizenga

Jacoba Huizenga

  • Researcher
  • Research groups: Participatie Zorg en Ondersteuning, Proactieve zorg voor thuiswonende ouderen