Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia : A Scoping Review

Auteurs Jacoba Huizenga, Aukelien Scheffelaar, Agnetha Fruijtier, Jean-Pierre Wilken, Nienke Bleijenberg, Tine van Regenmortel
Gepubliceerd in International Journal of Environmental Research and Public Health
Publicatiedatum 2022
Lectoraat Proactieve zorg voor thuiswonende ouderen, Participatie Zorg en Ondersteuning
Soort publicatie Artikel

Samenvatting

Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

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Aan deze publicatie werkten mee

  • Jacoba Huizenga
    • Onderzoeker
    • Lectoraten: Participatie Zorg en Ondersteuning, Proactieve zorg voor thuiswonende ouderen
  • Jean-Pierre Wilken
    • Lector
    • Lectoraat: Participatie Zorg en Ondersteuning
  • Nienke Bleijenberg | lector | lectoraat Chronisch Zieken
    Nienke Bleijenberg
    • Lector
    • Lectoraat: Proactieve zorg voor thuiswonende ouderen

Taal Engels
Gepubliceerd in International Journal of Environmental Research and Public Health
Trefwoorden dementia, mild cognitive impairment, lived experience, everyday life, citizenship, living in the community

Jacoba Huizenga

Jacoba Huizenga

  • Onderzoeker
  • Lectoraten: Participatie Zorg en Ondersteuning, Proactieve zorg voor thuiswonende ouderen